Last Saturday, my colleague/friend and I drove to Charlotte, NC to attend a statewide La Leche League conference. I have officially been a LLL leader for over 22 years but have been inactive for the last five or so.
My initial experience with LLL was in San Antonio, Texas in 1980. I was pregnant with my first child and have no earthly idea why I was even remotely curious about breastfeeding. I had never seen anyone breastfeed and God knows my mother was completely horrified by any and all body parts, so this was not an idea mentioned in my growing up years. But, something brought me to that Couples meeting that night and I became more and more interested. When I gave birth to my first son in 1981, I began attending meetings and the rest became my history. Suffice to say, my connections to LLL changed my whole paradigm of thinking, taught me loving and tender child rearing along in a nurturing style. In the end, it became my career choice, as I have been a board certifield lactation consultant for the last 14 years. The women in the LLL groups I belonged to in New York and in North Carolina have also become my life long friends with an attachment, like no other.
So, when I got to this Charlotte conference -- I had that familiar feeling of connection that I miss so desperately. Being a lactation consultant in private practice is a lonely field. These were my friends, my cohorts and many of these women had been to hell and back with me when my two year old son died tragically in 1995. It felt so good to be amongst these women. As well, there is a sense of "normal" at a LLL event. These are happy mothers and content babies, many of whom have made mothering a profession. They practice attachment parenting snuggling their babies in slings who were born in a most natural style, use alternative vaccination schedules, and they think before they accept most things handed down to them in the health field. It is a lovely arena.
On Saturday morning, I cheerfully attended my first session which was on increasing breast milk supply. This is a subject that has no end, as it has become the holy grail of breastfeeding. When the session was over, I came out only to be met by the horror stricken, tearful faces of two old time leaders who I have known for years. They grabbed me by the arm and said they needed to tell me something. My heart sank below my knees, I was terrified -- was it my husband? one of my sons? Which one? What? What? Jan said, "Karen's 21 year old son killed himself on Thursday. I just got word." I was horror stricken in every possible way and began crying uncontrollably. That was it. I wanted only to go home and see my own sons to be sure they were okay. I wanted to hold Karen, an old time LLL leader and lactation consultant, and rock her, knowing that her life would never be the same. I wanted to lay in the streets and sob for the agony of losing a child and the inability to ever comprehend the ache. The compounded horror of suicide is I feel, the worst of the worst. He had a gun, we came to find out, all the more horrible, I suppose. I cried on and off all day long and finally got home late that night, kissing and hugging those who were home and burying myself under many covers.
The funeral was a Catholic mass on Tuesday. This is the thing for me. Many said they could not attend because it would be "too hard" or "too upsetting" or too something. I feel this way. I do not have that choice. I am a fellow human being, a fellow traveler, if you wish. I am your friend. You are descending into hell and I have the responsibility to show up and to bear witness. Isn't that the VERY LEAST I can do? I must steel myself and wade through the fire and the grit, but I must be there. It is torture for me to go to that place in my heart that still has an eternal flame or torch. But, I go anyway.
The mass was nice, with touching music, moving eulogies by a brother and a friend. The brother said two eloquent things that I have thought of many times since. One was that he felt that Jesus had to go through hell and so had his brother Ted. The other really got me. Ted was bipolar and apparently, he suffered terribly, unresolved by medication and/or treatment. His brother said, "It was often very difficult to live with Ted. But, in fact, it was much more difficult to live AS Ted." It is so telling, that when one shoots themselves with the purpose of ending it all, one almost always chooses to blow their brains out. The pain of life seems much greater than this painful, instant death, at that moment.
And then, the receiving line, where this poor derailed family, stands receiving hugs and "I'm so sorries" while they barely have the strength to breathe in and out. There simply are NO words. I bring water to the mother. I bring a chair. It doesn't matter. The dad mentions that it will be odd not getting emails from his son. Oh honey, that will be the least! I hug the mother, my colleague, and she says, "Oh those babies. We love them so." Yes, indeed. I think to myself that they have no idea how long and rocky the road ahead is. On the phone she said to me, "He's with Jesus. He is fine. I have my faith." Yes, but hey, Jesus' heart broke over this tragedy as well. This will do your for awhile, but not for long. The gnawing will come at 3 am and no loving arms of Jesus will take away the agony of loss. The other side of midnight awaits all surving parents with hell on earth.
Wednesday, March 24, 2010
Necco Wafers
Growing up in the projects in the East New York section of Brooklyn in the fifties and sixties, was a truly unique experience. I could go on and on about the socialist form of living that was really beneficial in so many ways. When you were assigned one of the three huge city projects to live in, placement was made according to your total family income level. Thus, you either lived in low, middle, or high income housing. My family of Irish and Hungarian descent, lived in Boulevard Houses because we were a middle income family. My Irish Catholic father was a parking meter collector at the time, working for the City of New York. My raving atheist Hungarian mother stayed at home and spent much time "on the bench" with the other moms. This was group therapy or at the very least a support group, long before those terms were the vernacular.
The families who lived in the projects and for that matter, most of East New York (ENY) were almost all Jewish. I was being raised Roman Catholic. I was in fact "the other." When there was a Jewish holiday, I would often be the only student in my class to come to school and I would delight in helping my teacher clean out closets, rearrange classrooms, etc. Oddly, all the teachers were Jewish too, but did not get the privilege of a day off. I was the "shiksa girl" or "goyim" and several parents of my friends, did not encourage my presence around their children. I did not realize this at first, but as I became a more conscious age, I often had this feeling that I was "dirty."
On Wednesdays at 2:00, I would leave school to head for St. Gabriel's Church, well over a mile away for what was called either "Religious Instruction" or "Released Time." Either way, I hated it and was embarrassed to leave. The walk was long and kind of scary and amongst the few other non-Jewish kids, I don't remember any others walking along to St. Gabriel's. I was alone. At the time, there was Hannah Shea, Patrick Manetta, Diane Grinage, Gino Dinolfo and a few others who were not Jewish, but they must have either been in another grade, or not been forced to attend this Wednesday ritual, so I never saw them.
I was always very intrigued and in awe of receiving communion. Part of me, was particularly confused because my Catholic dad never received along side of me as other families did. Years later I came to find out that this good, honest, faithful guy had a divorce in his past which rendered him excommunicated from such last suppers. I was angry about that for the rest of his life. Nevertheless, each week, I would go into that dark scary booth to confess my sins to the priest on Saturdays, say my penance, and receive communion on Sundays. Sister Martin Joseph (why the male names always?) said, "Never chew Jesus, let him melt in your mouth." One of my biggest fears became the dread that perhaps Jesus would get stuck in my teeth or palate and I would be damned forever, as I suppose, would He!
Growing up in the projects meant that you always had lots of friend so play with. No matter what the day or season, there was someone around to dress Ginny dolls with, to go sledding with, to set up a neighborhood carnival with, or to ride bikes and roller skate with. Great fun. When it was too cold or rainy to play outside, we would either meet in the hallways of the building or visit each others apartments to play. So an assortment of friends like Nadine, Susan, Audrey, Paula, and others would come to play. They were all Jewish, of course. I would take them into my room and say, "Okay, I am the priest. Kneel down." I have no idea why, but they would heed my commands. It is often like that with children -- someone becomes the director and others follow suit. I was in fact, often labeled as "bossy." Once they kneeled, I would have them fold their hands in prayer, and close their eyes. Then, I would carefully peel one Necco wafer out of my pack, demand that they stick out their tongues and place the wafer there. "DON"T CHEW!" I would command, "Let Jesus melt in your mouth. You cannot chew Jesus!"
Although they seemed obedient time and time again, when we played this game, it was in fact, upsetting enough to them, to cause them to report to their parents. Some of these parents were Holocaust survivors, but even those who were not, found this less than amusing. The parents would come banging on our apartment 4A door, report to my father what was happening and I would be told to stop at once. At the time, I couldn't really understand why, but I sure do now.
The families who lived in the projects and for that matter, most of East New York (ENY) were almost all Jewish. I was being raised Roman Catholic. I was in fact "the other." When there was a Jewish holiday, I would often be the only student in my class to come to school and I would delight in helping my teacher clean out closets, rearrange classrooms, etc. Oddly, all the teachers were Jewish too, but did not get the privilege of a day off. I was the "shiksa girl" or "goyim" and several parents of my friends, did not encourage my presence around their children. I did not realize this at first, but as I became a more conscious age, I often had this feeling that I was "dirty."
On Wednesdays at 2:00, I would leave school to head for St. Gabriel's Church, well over a mile away for what was called either "Religious Instruction" or "Released Time." Either way, I hated it and was embarrassed to leave. The walk was long and kind of scary and amongst the few other non-Jewish kids, I don't remember any others walking along to St. Gabriel's. I was alone. At the time, there was Hannah Shea, Patrick Manetta, Diane Grinage, Gino Dinolfo and a few others who were not Jewish, but they must have either been in another grade, or not been forced to attend this Wednesday ritual, so I never saw them.
I was always very intrigued and in awe of receiving communion. Part of me, was particularly confused because my Catholic dad never received along side of me as other families did. Years later I came to find out that this good, honest, faithful guy had a divorce in his past which rendered him excommunicated from such last suppers. I was angry about that for the rest of his life. Nevertheless, each week, I would go into that dark scary booth to confess my sins to the priest on Saturdays, say my penance, and receive communion on Sundays. Sister Martin Joseph (why the male names always?) said, "Never chew Jesus, let him melt in your mouth." One of my biggest fears became the dread that perhaps Jesus would get stuck in my teeth or palate and I would be damned forever, as I suppose, would He!
Growing up in the projects meant that you always had lots of friend so play with. No matter what the day or season, there was someone around to dress Ginny dolls with, to go sledding with, to set up a neighborhood carnival with, or to ride bikes and roller skate with. Great fun. When it was too cold or rainy to play outside, we would either meet in the hallways of the building or visit each others apartments to play. So an assortment of friends like Nadine, Susan, Audrey, Paula, and others would come to play. They were all Jewish, of course. I would take them into my room and say, "Okay, I am the priest. Kneel down." I have no idea why, but they would heed my commands. It is often like that with children -- someone becomes the director and others follow suit. I was in fact, often labeled as "bossy." Once they kneeled, I would have them fold their hands in prayer, and close their eyes. Then, I would carefully peel one Necco wafer out of my pack, demand that they stick out their tongues and place the wafer there. "DON"T CHEW!" I would command, "Let Jesus melt in your mouth. You cannot chew Jesus!"
Although they seemed obedient time and time again, when we played this game, it was in fact, upsetting enough to them, to cause them to report to their parents. Some of these parents were Holocaust survivors, but even those who were not, found this less than amusing. The parents would come banging on our apartment 4A door, report to my father what was happening and I would be told to stop at once. At the time, I couldn't really understand why, but I sure do now.
Wednesday, February 24, 2010
Often too late to find old friends....
Old friends mean a lot to me. Old acquaintances and relatives do too. Now with the advent of Facebook, it all becomes a reality. One can find just about anyone and if you can't find the one you are looking for, surely you can find another family member or a friend who can.
We lived in Texas some 28 years ago. Shep and I were just married and living in Manhattan and absolutely loving it....when, lo' and behold, his job with WR Grace required a transfer to Dallas, Texas. Being Ms. New York my entire life and working at that time as a manager in Macy's Cellar, I was horrified. Although we were newlyweds, we argued about this move passionately and watched the show, "Dallas" with renewed curiosity mixed with dread.
We flew to Dallas, and trying to duplicate Manhattan, I found the only high rise apartment building at the time, (in Turtle Creek) and put down a deposit to hold it till our arrival. I went to Joske's Department store and applied for a position as a buyer. Already on slippery terra ferme, the mud sunk deeper, when suddenly there was a shift in plans. The move would be changed from Dallas to San Antonio. This was it -- too much. I could never do it. But, Shep did have to relocate; there was no way to avoid it if he wanted to advance his career. And so, I gave in, had a cool Manhattan farewell party with the "Dallas" theme as background music and bid adieu to our upper east side apartment in The Claridge House.
To say I was a “poor re-locator” would be a gross understatement. As a hip New Yorker, born and bred in the Brooklyn housing projects, I relocated with such reluctance and skepticism, that my adjustment was destined to fail. The quirky thing I notice about so called "worldly wise New Yorkers", is that in actuality, they can be very provincial. There is something really odd about living in New York and the daily struggle for survival. The goal is to make it to work and back, through a gourmet dinner and wine, then, into your loft bed for the night, and when that is accomplished, you feel like a hero/survivor. There is the notion that the harder it is, the bigger the struggle, the better it must be! After all, good things don't come easy, so it stands to reason that New York MUST be the best, because it is the most difficult. I believed that with all my heart and never wanted to leave. Most New Yorkers don't. The truth is though, that there is life outside of New York and in fact, everyday life need NOT be a battle royale. It can be simplified and less stressful and still very worth living.
Back to the subject matter here. We did relocate to San Antonio, Texas into a garden apartment complex (there were no tall buildings!) ironically named 7600 Broadway! I worked for Dillard’s Department stores as the buyer for three departments in about a dozen stores in Texas, Arkansas and New Mexico. I was the gifts, lamps, and wall decor buyer. And my office was in a warehouse on Broadway with several other buyers. My boss was a genuine Texas merchandiser who chewed and spit tobacco, in between smoking Marlboros. He was kind, but I was horrified. He was short of breath and slightly impatient with my low comfort level with numbers, facts, and figures. I have never been a numbers girl and even in college as a merchandising major, I struggled with Open-to-buy formulas. Send me to the wholesale gift market and I was a gem. I could choose items, colors, styles that almost always sold. I had a true sense of what someone else would like to purchase, even when I hated the item. With a great flair for merchandising the item and creating desire for it, I was worth my salary, but for my number sense -- I should have been slaughtered.
Now, while I was busy learning to drink Dr. Pepper and purchase stone cactus displays and armadillo statues, Shep was working with Howard Publicover for WR Grace. WR Grace was busy spreading their retail and restaurant acquisitions at the time, and Handy Dan home stores was their big push. Handy Dan was the precursor to Home Depot in the southwest. I think Howard was slightly intimidating to Shep as was the corporate world he was now in. Making presentations to large groups of executives always seemed to rattle Shep, though he did well. Howard was perfect in his job though, and we soon became friends with Howard's family, who had relocated from Massachusetts. We all tried to learn Texas two step dances together, ate on the lovely River walk and shared our stories of missing the Northeast and our friends.
The Publicovers were the epitome of a large, happy family and we loved to spend time with them in their big house with four kids. Their twin daughters, Kym and Karyn were in high school by then, their son Mark was probably in elementary school as was their perky daughter, Lynda. I was pregnant with my first child and very excited to be so. Shep and I had traded up and bought our first house on Dove Flight in the northern part of town. San Antonio was still a very military area and this part of town was especially so, thus we fit in, even less. Being around the Publicover family through my pregnancy was so appropriate and when I had baby Nicholas they were quite helpful in getting us acclimated. Lynda was especially interested in this new baby and she spent time at our house helping me. I too, was very drawn to her sweetness, her zaniness and her open questions.
This family seemed to do most things, BIG. Their new house was so big and the windows might have been the biggest I had ever seen, with drapes that ran for two stories. The kitchen was big. The yard was big. This was Texas where most things are BIG. But biggest of all, was their camper which we loaded into one weekend, with baby Nicholas in my arms. I cannot remember if we had a destination or not, but it sure was fun riding around while Howard, also a big guy, drove this mammoth vehicle. Howard and Shep had purchased cowboy hats and boots at WR Grace's cowboy store, Shepler’s and wore them well. So, as I remember, it was a fun time, at a tender and impressionable phase of our lives.
After two years of non-stop comparisons to life in New York, Shep finally relented and we made plans to move back. I have always looked back on this decision as a mistake, because we were doing well, had a nice life and had made some good friends. Texas is a very family friendly place, the antithesis of where we were headed. But, this is how life goes and this is how maturation takes place, through making some poor, but hell driven decisions. So, back we went, only this time we moved out to Hampton Bays, Long Island and I shall write more about that another time.
We sent Christmas cards to the Publicovers for many years and then somehow, that ended, but I am not sure why. Baby Nicholas is now, 28 and married and his five brothers followed him into this family. I am a lactation consultant and will be attending a conference this summer in San Antonio, so all these years later, I became curious as to what and whom I will find and if anything will be vaguely familiar. Enter, Facebook -- the life changing channel of communication, perfect for someone like me who always likes to follow-up on lost friends. Through just a little bit of searching, I found the Publicover twins and then, Lynda! Oddly, coincidentally, synchronicity, who-knows-what, Howard Publicover had died the day before! Irony or ironies? The family was too busy with funeral plans to email back and forth which was completely understandable, yet so very sad to hear. I became even more curious about what had become of this family.
How uncanny this is? I, who thinks of death and its meanings, more often than is probably normal, runs smack into death. There are these grown-women-and-men-children who have lost their big daddy. Their mom, Virginia (who in her Facebook photo looks very much like a Texas country singer), has lost her husband of so many years. Lynda has posted two photos that haunt me in their loveliness. One is of her in hospital bed with her dying dad. The other, so striking, is of her holding his hand as he lay dying. She had been told many times that she had "man's hands" and she finally came to realize that her hands were her father's replicas. The wonders of genetics. And, she is so honored to have the facsimile of the hands of the man she loved so dearly. We are in touch and I am enjoying hearing about her grownup life. She says I was an inspiration to her in the way that I nurtured my first child. She went on to breastfeed each of her children, which to me, is the greatest honor of all. Surprisingly, I recollected my first year of mothering as clueless and so ungrounded. Who knew? Through the eyes of a 12 year old, comes glory and tribute unknown to oneself.
So, moral of story -- too little, too late. We will never see Howard Publicover, though we hope to visit with the rest of his family. I wish I could keep up with everyone who has ever crossed my path, but it seems that is not possible. I am ever curious as to the impact I may have had on them, and how they perceived me, at different times in my life.
We lived in Texas some 28 years ago. Shep and I were just married and living in Manhattan and absolutely loving it....when, lo' and behold, his job with WR Grace required a transfer to Dallas, Texas. Being Ms. New York my entire life and working at that time as a manager in Macy's Cellar, I was horrified. Although we were newlyweds, we argued about this move passionately and watched the show, "Dallas" with renewed curiosity mixed with dread.
We flew to Dallas, and trying to duplicate Manhattan, I found the only high rise apartment building at the time, (in Turtle Creek) and put down a deposit to hold it till our arrival. I went to Joske's Department store and applied for a position as a buyer. Already on slippery terra ferme, the mud sunk deeper, when suddenly there was a shift in plans. The move would be changed from Dallas to San Antonio. This was it -- too much. I could never do it. But, Shep did have to relocate; there was no way to avoid it if he wanted to advance his career. And so, I gave in, had a cool Manhattan farewell party with the "Dallas" theme as background music and bid adieu to our upper east side apartment in The Claridge House.
To say I was a “poor re-locator” would be a gross understatement. As a hip New Yorker, born and bred in the Brooklyn housing projects, I relocated with such reluctance and skepticism, that my adjustment was destined to fail. The quirky thing I notice about so called "worldly wise New Yorkers", is that in actuality, they can be very provincial. There is something really odd about living in New York and the daily struggle for survival. The goal is to make it to work and back, through a gourmet dinner and wine, then, into your loft bed for the night, and when that is accomplished, you feel like a hero/survivor. There is the notion that the harder it is, the bigger the struggle, the better it must be! After all, good things don't come easy, so it stands to reason that New York MUST be the best, because it is the most difficult. I believed that with all my heart and never wanted to leave. Most New Yorkers don't. The truth is though, that there is life outside of New York and in fact, everyday life need NOT be a battle royale. It can be simplified and less stressful and still very worth living.
Back to the subject matter here. We did relocate to San Antonio, Texas into a garden apartment complex (there were no tall buildings!) ironically named 7600 Broadway! I worked for Dillard’s Department stores as the buyer for three departments in about a dozen stores in Texas, Arkansas and New Mexico. I was the gifts, lamps, and wall decor buyer. And my office was in a warehouse on Broadway with several other buyers. My boss was a genuine Texas merchandiser who chewed and spit tobacco, in between smoking Marlboros. He was kind, but I was horrified. He was short of breath and slightly impatient with my low comfort level with numbers, facts, and figures. I have never been a numbers girl and even in college as a merchandising major, I struggled with Open-to-buy formulas. Send me to the wholesale gift market and I was a gem. I could choose items, colors, styles that almost always sold. I had a true sense of what someone else would like to purchase, even when I hated the item. With a great flair for merchandising the item and creating desire for it, I was worth my salary, but for my number sense -- I should have been slaughtered.
Now, while I was busy learning to drink Dr. Pepper and purchase stone cactus displays and armadillo statues, Shep was working with Howard Publicover for WR Grace. WR Grace was busy spreading their retail and restaurant acquisitions at the time, and Handy Dan home stores was their big push. Handy Dan was the precursor to Home Depot in the southwest. I think Howard was slightly intimidating to Shep as was the corporate world he was now in. Making presentations to large groups of executives always seemed to rattle Shep, though he did well. Howard was perfect in his job though, and we soon became friends with Howard's family, who had relocated from Massachusetts. We all tried to learn Texas two step dances together, ate on the lovely River walk and shared our stories of missing the Northeast and our friends.
The Publicovers were the epitome of a large, happy family and we loved to spend time with them in their big house with four kids. Their twin daughters, Kym and Karyn were in high school by then, their son Mark was probably in elementary school as was their perky daughter, Lynda. I was pregnant with my first child and very excited to be so. Shep and I had traded up and bought our first house on Dove Flight in the northern part of town. San Antonio was still a very military area and this part of town was especially so, thus we fit in, even less. Being around the Publicover family through my pregnancy was so appropriate and when I had baby Nicholas they were quite helpful in getting us acclimated. Lynda was especially interested in this new baby and she spent time at our house helping me. I too, was very drawn to her sweetness, her zaniness and her open questions.
This family seemed to do most things, BIG. Their new house was so big and the windows might have been the biggest I had ever seen, with drapes that ran for two stories. The kitchen was big. The yard was big. This was Texas where most things are BIG. But biggest of all, was their camper which we loaded into one weekend, with baby Nicholas in my arms. I cannot remember if we had a destination or not, but it sure was fun riding around while Howard, also a big guy, drove this mammoth vehicle. Howard and Shep had purchased cowboy hats and boots at WR Grace's cowboy store, Shepler’s and wore them well. So, as I remember, it was a fun time, at a tender and impressionable phase of our lives.
After two years of non-stop comparisons to life in New York, Shep finally relented and we made plans to move back. I have always looked back on this decision as a mistake, because we were doing well, had a nice life and had made some good friends. Texas is a very family friendly place, the antithesis of where we were headed. But, this is how life goes and this is how maturation takes place, through making some poor, but hell driven decisions. So, back we went, only this time we moved out to Hampton Bays, Long Island and I shall write more about that another time.
We sent Christmas cards to the Publicovers for many years and then somehow, that ended, but I am not sure why. Baby Nicholas is now, 28 and married and his five brothers followed him into this family. I am a lactation consultant and will be attending a conference this summer in San Antonio, so all these years later, I became curious as to what and whom I will find and if anything will be vaguely familiar. Enter, Facebook -- the life changing channel of communication, perfect for someone like me who always likes to follow-up on lost friends. Through just a little bit of searching, I found the Publicover twins and then, Lynda! Oddly, coincidentally, synchronicity, who-knows-what, Howard Publicover had died the day before! Irony or ironies? The family was too busy with funeral plans to email back and forth which was completely understandable, yet so very sad to hear. I became even more curious about what had become of this family.
How uncanny this is? I, who thinks of death and its meanings, more often than is probably normal, runs smack into death. There are these grown-women-and-men-children who have lost their big daddy. Their mom, Virginia (who in her Facebook photo looks very much like a Texas country singer), has lost her husband of so many years. Lynda has posted two photos that haunt me in their loveliness. One is of her in hospital bed with her dying dad. The other, so striking, is of her holding his hand as he lay dying. She had been told many times that she had "man's hands" and she finally came to realize that her hands were her father's replicas. The wonders of genetics. And, she is so honored to have the facsimile of the hands of the man she loved so dearly. We are in touch and I am enjoying hearing about her grownup life. She says I was an inspiration to her in the way that I nurtured my first child. She went on to breastfeed each of her children, which to me, is the greatest honor of all. Surprisingly, I recollected my first year of mothering as clueless and so ungrounded. Who knew? Through the eyes of a 12 year old, comes glory and tribute unknown to oneself.
So, moral of story -- too little, too late. We will never see Howard Publicover, though we hope to visit with the rest of his family. I wish I could keep up with everyone who has ever crossed my path, but it seems that is not possible. I am ever curious as to the impact I may have had on them, and how they perceived me, at different times in my life.
My Friend Nancy
Last night at church my friend, Nancy shared a slide show of her recent "pilgrimage" to Iona, Scotland. Pilgrimage?? This means what? Journey? Retreat? Meditation? Hiking? What? I am not sure I know this word. But, there I saw the most incredible scenes of stone walls, abbeys, beaches, roads, flowers, and caves -- some of which were millions, yes, millions of years old. It was amazing to see, I tell you. And it was deeply awe inspiring and suddenly I wished I had been on just that pilgrimage! When Nancy was thrashed around in the wind on the end of an island on a rocky beach to the point where she could barely remain standing, the residents of the "community" said, "Oh, the wildness of God!" I love that! The wildness of God.....
And kudos to my friend, Nancy, who is one of the few friends I have come to know in this second half of my life who really wants to keep digging deeper and deeper. I have laid claim to that in so many relationships, where I keep wanting to know more, more, more about myself, about my soul and about why I am here. I believe in her own way, this is what Nancy does too and in her pilgrimages, that is so much more available as she stands thrashing about watching and feeling, the "wildness of God."
And kudos to my friend, Nancy, who is one of the few friends I have come to know in this second half of my life who really wants to keep digging deeper and deeper. I have laid claim to that in so many relationships, where I keep wanting to know more, more, more about myself, about my soul and about why I am here. I believe in her own way, this is what Nancy does too and in her pilgrimages, that is so much more available as she stands thrashing about watching and feeling, the "wildness of God."
Monday, February 8, 2010
The Lyme Nightmare
I am still reeling today. I hate that expression because my bipolar/borderline personality mother used it when accusing me of hurting her, but here it is true... I AM reeling! Yesterday, Peter (the Lyme suffering son), and Oliver (the 21 yo activist who was home from school for Super Bowl), and I went to a Lyme support group that meets here in Raleigh. Not only is the meeting so poorly run, or shall I say "not run" that you could lose your mind, but it is positively depressing and hopeless. I don't know where to begin, except to say that the leader of the meeting does not lead and those few people who by sheer persistance, find the meeting (it is not advertised anywhere) are so depressed and so beaten, that the sense of complete hopelessness is awash over your entire being.
It is hard to describe the quagmire that is Chronic Lyme disease. It is a political, medical, and legal nightmare of the most extreme proportion. Medically it seems that there are few or no doctors willing to treat this controversial disease as there is no definitive protocol and the one commonly used remedy of long term antibiotics, is of great controversy in the medical arena and completely unacceptable by the insurance companies. So much so in fact, that one doctor formerly in North Carolina was sued for millions of dollars by Blue Cross and lost not only his practice but everything he owned. He has moved from NC to SC and now to DC but obviously offers no insurance reimbursement, so the out of pocket expense is out of reach for most of us. Other doctors have lost their licenses to practice through review by the Infectious Disease Society of America which is as riddled with conflict of interest as the tobacco industry and the infant formula lobby rolled into one! It is a frightening state of affairs when the members of that review board are in charge of our well being and health.
This of course also links into the political arena with attempted protest groups in legislative branches in local government and protests launched with little or no impact. The legal implications better known as CYA by most practitioners leave them unwilling to risk the witch hunt that awaits if they continue treating Lyme patients with long term antibiotic therapy, to the point where doctors seem to want to run for the hills when they are discovered to be Lyme-saavy or as the terminology goes, "Lyme Literate." If they are deeply moral, compassionate and really are doctors because they believe in human kind and truly want to help save lives, then this becomes a heck of a moral dilemma for them to wrestle with. Imagine, trying to decide between hanging onto your medical license and supporting your family and doing what you went to school to do, or losing it all while saving lives and health. Hippocratic oath anywhere???
So, the support group is hopeless really. I cannot sit at a table where no one is introduced, and there is one upmanship on who has had this disease longer or to a more severe degree. Then too, there are the really scary alternative treatment suggestions by some. I mean these sufferers are risking leukemia and the like by removing some of their blood and exposing it to infrared rays?! Or, using Bariatric oxygen treatments at levels potentially toxic to their brains. Two out of three, the leader of the group included shared that they would much rather have a diagnosis of cancer. This is hard, too hard. I hate my boy hearing this hopeless talk. I really hate it. I want us to start our own support group with maybe a guest appearance by someone who actually got cured and feels better. Imagine that? Or, maybe a pain specialist, or a mental health provider sympathetic to the ensuing depression. Surely, there has to be better support available then just sharing our darkest terminal thoughts.
It is hard to describe the quagmire that is Chronic Lyme disease. It is a political, medical, and legal nightmare of the most extreme proportion. Medically it seems that there are few or no doctors willing to treat this controversial disease as there is no definitive protocol and the one commonly used remedy of long term antibiotics, is of great controversy in the medical arena and completely unacceptable by the insurance companies. So much so in fact, that one doctor formerly in North Carolina was sued for millions of dollars by Blue Cross and lost not only his practice but everything he owned. He has moved from NC to SC and now to DC but obviously offers no insurance reimbursement, so the out of pocket expense is out of reach for most of us. Other doctors have lost their licenses to practice through review by the Infectious Disease Society of America which is as riddled with conflict of interest as the tobacco industry and the infant formula lobby rolled into one! It is a frightening state of affairs when the members of that review board are in charge of our well being and health.
This of course also links into the political arena with attempted protest groups in legislative branches in local government and protests launched with little or no impact. The legal implications better known as CYA by most practitioners leave them unwilling to risk the witch hunt that awaits if they continue treating Lyme patients with long term antibiotic therapy, to the point where doctors seem to want to run for the hills when they are discovered to be Lyme-saavy or as the terminology goes, "Lyme Literate." If they are deeply moral, compassionate and really are doctors because they believe in human kind and truly want to help save lives, then this becomes a heck of a moral dilemma for them to wrestle with. Imagine, trying to decide between hanging onto your medical license and supporting your family and doing what you went to school to do, or losing it all while saving lives and health. Hippocratic oath anywhere???
So, the support group is hopeless really. I cannot sit at a table where no one is introduced, and there is one upmanship on who has had this disease longer or to a more severe degree. Then too, there are the really scary alternative treatment suggestions by some. I mean these sufferers are risking leukemia and the like by removing some of their blood and exposing it to infrared rays?! Or, using Bariatric oxygen treatments at levels potentially toxic to their brains. Two out of three, the leader of the group included shared that they would much rather have a diagnosis of cancer. This is hard, too hard. I hate my boy hearing this hopeless talk. I really hate it. I want us to start our own support group with maybe a guest appearance by someone who actually got cured and feels better. Imagine that? Or, maybe a pain specialist, or a mental health provider sympathetic to the ensuing depression. Surely, there has to be better support available then just sharing our darkest terminal thoughts.
Sunday, January 31, 2010
I Think This May be a Normal Day!
We have been snowed in for two days! In Raleigh, NC, that is a big deal.... About 5 inches came down on Friday night and then sleet all day Saturday, so we have all been snowbound and my kids have been out for 7-8 hour stretches playing non-stop with their sleds and other kids. Imagine! Now, that in and of itself seems very normal to me! I have cleaned out my sheets closets and gotten rid of all old and frayed ones. Have also done the same with all the old towels that we have had since before we were married (31 years worth!). Got rid of old medications and unused shampoos and organized under sinks and in cabinets. I've made lots of hot chocolate and had tea with my neighbor and good friend. Have slept till 9 am and been on the treadmill for 30 minutes each morning without complaining. I got to scrapbook for a few hours yesterday and got all our Rome photos cut and pasted. I watched some tv, including the 20/20 special on my "friends", John and Elizabeth Edwards, as well as several editions of "Say Yes to the Dress" which I find completely fun and distracting. We ate great food made by dear husband and chef, Shep including Cornish game hens with orange sauce, sauteed buttenut squash with greens and wild rice, followed by an almond torte with coffee buttercream and chocolate granache topping. Not bad, eh? And now, we hear no school for tomorrow too! Is this it? Is this a normal day??? I think it may be... Ahhhhhh, feels good to me.
Friday, January 29, 2010
After Death
This is one of the things that gnaws at me about death. I cannot bear the thought of things going on without me. I mean, how could new inventions or discoveries occur without me knowing about them? So, the new Apple Ipad arrived yesterday and all the world sat up to see. Haiti continues to barely function and Haitians die in droves from injuries and now, from disease setting in. Emergency call for donor human milk for Haiti, abounds. News is happening. Things are changing. All this in just a week. But, my friend Mary is not here to participate. I cannot wrap my mind around that. It has always mesmerized me about death. Then too, Gregory would be graduating from high school next Spring. Talk about not being able to wrap one's mind around.... Death is so endlessly perplexing for me.
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